Wednesday, January 6, 2010
Sorry, it's been a while that I didn't update the blog. I'm still adjusting myself, living everyday without acik. Life has been hard for me, seriously. One month after acik, my grandfather passed away. I lost both of them in just a month. They taught me, from knowing nothing until what I'm today. I'm so grateful I had them in my life.
I hope, 2010 will be a better year for me, and the family...Insyaallah.
Sunday, September 20, 2009
Semuanya seperti mimpi, rasanya sampai sekarang masih terasa Acik berada di sisi saya seperti yang biasa. Masih terbau lotion yang saya selalu sapukan pada Acik.
Raya tahun ni sudah tiada makna untuk kami sekeluarga. Setiap tahun, Acik orang yg paling busy for raya's preparation. Acik akan busy buat kuih, kemaskan rumah dan siapkan duit raya utk semua anak2 saudaranya. Sekarang, Acik sudah tinggalkan kami semua.
May Acik rests in peace there. I will always love you, Acik! I'm very lucky to get the chance to learn lots of things from you. Acik, you have a special place in my heart, and I'll never forget you.
Semoga Acik ku tersayang di tempatkan di kalangan orang2 beriman. Amin.
---> E-ya <---
Saturday, July 25, 2009
Reading blogs doesn't help either. Here and there I noticed that several cancer survivors are battling with the spreading of the desease to other parts of their body. Some will undergo surgery while others will be sent for chemo. Sighh...
Wednesday, July 1, 2009
It's been 3 weeks since my surgery and alhamdullillah, I'm still blessed by God the alMighty with time to spend with my loved ones. No doubt after the surgery I was feeling very tired. Tired of the highest order. No kidding. I could hardly keep my eyes open. I'd dozed off most of the day. I was just like a new born baby, waking up a few minutes then find myself dozing off again. This went on for more than a week, before I decided to try and do something about it. But with my legs still wobly, what can I do? I cannot go out for morning walk like I used to do before. Exercise with other elders at the playground is still a no no and swimming? Huh? I gotta be joking...I reckoned I'd fall asleep the moment my head touch water... Ohh how I miss all the activities that I used to do before ... Uwaaa....! Nonetheless despite all that, the doctors said that my recovery was good, considering that the operation was a major one for me.
On the day of surgery E-ya told the surgeon that I have a history of waking up fast from the effects of aneasthethia so much so that the surgeon said that he will also administer me with extra sleeping pills so that I will not wake up quick enough to feel the pain from the cut on my head. But what happened instead? The surgery was over at around 2 am and I woke up early the next morning even with the extra sleeping pills.By noon I was already entertaining visitors in the ward. In fact I recalled receiving a lot of visitors that day and I was very excited seeing familiar faces of relatives and friends. But I think my visitors were more shock to see me. I had my head shaved at the back and the place where the incision was made was covered with plaster. When the plaster was removed, they can see all 40 big staples arranged in a U shape on the right hand side of my head, next to the ear. Me all skin and bones and now with U shape metal staples up on the head. It must have really been a sight.
I was only a day in the ICU before being transferred to the ordinary ward.In this normal ward I spent 5 days before I was discharged. I was a bit surprised as I thought I'd been in the hospital at least 10 days or more. But I think after the doctors saw me on two occassions already busy talking on the hand phone, me again wheeling myself on the wheel chair down the hallway or to other patient's bed and one morning found me hungrily devouring roti canai, well that must have been the day that they decided to say, "Get this lady outta here! Pronto!" Hahaha...
But before I was discharged I was given another CT scan and an appointment with the opthalmologist to check my eye. As I've mentioned before, after the surgey I'm having trouble with my eye sight. No it's not that I cannot focus or see things, it's just that I find my vision scope has narrowed a bit. I have trouble to see objects at the sides. I can see fine if the objects are in front but not at the sides. The first day I was at home, E-Ya was already shouting, "Acik! look out for the ...! But then too late...I already banged my head against the door as I couln't see it. Luckily nothing serious happened because of that. Even as I was typing this entry, I keep pressing the capslock key as I couldn't see it and I thoughtI was pressing the A or S key. Imagine all the mistakes I've made. Luckily dear E-Ya is around to do editing for me. Bless the girl. E-Ya told me when I was in the ICU , when I couldn't talk because there were tubes down my throat, I wrote notes to her but I mixed up the alphabets until she herslf does not know what I was trying to say. I mixed up the 's' 'b' 'd' 'a' and many others. Sometimes it's like as if I'm dyslexic. Other times I just mis spelt the words. But that was then. Now I don't have that problem anymore. Alhamdullillah. Another problem is that I have difficulty with adjusting distance of objects from me. Sometimes I think the object is there and try to grab it but then it's actually a little further or nearer from me . That's why earlier I said I'm experiencing optical illusions. I hope with time my vision canbe restored back to normal. Insya Allah. Because of this problem with my eye sight one funny thing happened when I was in the ICU. when I woke up the first question I asked my sister who waited on me was, "Sis are my eyes now squinted?" When she replied, "No", Boy that was a big relief!
And then the day came when I had to remove the staples on my head. I had them removed on Monday, a week after surgery. At first I was so damn afraid just thinking about it. Actually while in the hospital I did not get the oppurtunity to see the condition of my head. When I asked E-Ya or my sisters how did my head look like, they all just say, "Oh its fine, nothing to worry...". Yeah right... But when I got home and got posession of my handphone, the first thing I did was took photo of my head and I gotta tell you I myself was appalled and afraid to see that it looked like that. I'd never imagine that it would even be like that... I have the photos for my own personal momentos, but for you all I think its enough if I say that it looked like what Mawi always says, "World!". It's too gory to show it here and for those who have photo sensitive syndrome or photo sensitive epilepsy, I don't want to be the person responsible for your fainting, or seizures. Hahaha... Serious folks. My own brother doesn't even dare to look at it longer than just a few seconds. My sister was afraid to clean the wound eventho its healingwell. And who is the person most undisturbed by all these? Who else but E-Ya. At first I had my cousin Rozaida, who is the doctor to clean it for me. E-Ya watched and after that the responsibility was hers.
That was also the reason why I was afraid when the day came to remove the staples. I told E-Ya if the pain of removing the staples is excruciating, don't be surprised if I yell and grab the nurses by the neck. I reminded her to just be ready to restrain me from doing that. But alhamdullilah, even without anaethesia I did not feel pain when the nurse removed the staples. E-Ya was present when the staples was removed and she described to me how the nurses did it. She said the nurses used an apparatus to grab the staples and then yanked it out from the head. Ouch! But as I said no pain. Even if there was, it was just like ant bites only. The next day I was already shampooing my hair. Now the wound is completely dry and there is no pain at all. I do not also have any headaches. I really, really thank God the alMighty for making all these easy and painless for me.
Then last Monday, I went to see the oncologist. A new one again this time, but at least she knew my medical history. She said that I will be sent for brain radiotherapy and the simulation will be on 7th of July at 3.30 pm. She said The radiotherapy is to ensure there will be no recurrence, that it gets all the small tumors (if any) that cannot be captured by CT scan. Just thinking about it scares me, but I guess these doctors knows what'sbest for me, so I obliged. The only thing asked was what will the side effects be. She mentioned things like nausea, headaches and memory loss. Hem... Not too bad I guess... Whoa..., wait a second... MEMORY LOSS?? Will I not be able to recall events that had happened in my life or will I not remember my family, friends or even my own self? What about all my ex boyfriends? Jeng, jeng, jeng.... Oh well, adios guys ...
However looking thru the internet I found out that this memory loss is only temporary. and other side effects will also also include fatigue and hair loss. The doctor also said that I'll be zapped only 5 times and that there will be medications prescribed to me to control the side effects, so Insya Allah I'll be alright. But just in case, do pray for me too ya... Pray that I'll be able to tolerate all this and that my body will be able to withstand the procedure. As I am already fatigue right now and I don't know how much more fatigue I'll be.
That 7th of July will also be my appointment date with the Neuro surgeons. But it will be in the morning. So I guess I'll be pretty busy next week. Previously I had appointments with only two units - gynae onco and onco. But after the surgery I have two more attachments with the opthalmologist and neuro surgeon. I guess now HUKM is like my second family already.
OK I guess I'd better stop here before I fall asleep in front of this PC. I'll drop by again next time if I have the time and energy. Bubye!
Sunday, June 14, 2009
Monday, June 8, 2009
I'm E-Ya here. I'm writing to let all know that my beloved aunt is now fighting for her life in HUKM. On Sunday (June, 7th) at around 10am, I found my aunt lying on her bed and I was so surprised to see her condition. She can't move her body, and can't talk at all. She tried to say something to me, but I can't understand her. My first thought was she might had stroke.
I became panicked when she couldn't respond to me and started to close her eyes. The only thing I could remember was to get an ambulance.
My aunt was admitted immediately to the Emergency Unit, and since it was sunday, I had to wait for two hours and thirty minutes until an Oncologist came and examine my aunt. The Oncologist didn't take a long time to find the cause. He straight away explained that it was not stroke, but it's the BRAIN.
Right after that, my aunt was sent for a brain scan. At around 5.15pm, a NeuroSergeon came to see my aunt and evaluated the result of the scan. As what they expected, they found a tumor (size approximately 4 by 4) and I was also told that they can see blood in the brain. Nothing else I asked to them except what can they do for my aunt.
They wanted to do the brain surgery in order to remove the tumor and the blood. The surgery is to make my aunt wake up again. They explained to me and other family members about the risks. One of the surgeon showed to me there's a blood vessel which is very near to the tumor. I can see it clearly from the image on the computer. If the blood vessel is injured during the surgery, my aunt will not wake up anymore.
It was a very tough decision to be made. Maybe the toughest in my life. I couldn't think of anything at that time, however my heart strongly says to proceed with the surgery.
My mom signed the consent letter, and at 9pm my aunt was sent to the OT. The surgery will take 5 hours.
At 2.30 am, the surgeons went out from the OT and told me that the surgery was a success. It went well, and my aunt was all the time stable during the surgery. Alhamdulillah! Syukur tak terhingga......
My aunt is now in the ICU, and we shall wait for her to wake up. Plz pray that she will be able to recover. Plz pray that she will be able to talk to me everyday like it used to be. Plz pray that she could take care of my grandparents like she always do..........
From the bottom of my heart, I know she's strong. She promised to me that she will fight to matter what!
To all my family members, my aunt's friends, Mr. Ice T and friends, thank you so much for your support and prayers. Hanya Allah SWT yg membalas budi baik kalian.
Monday, June 1, 2009
Off we go ...survivors on the march
For once, no worried faces - only laughs and smiles ...
There was also the participation of people who have helped make this event a success. They comprises mainly of volunteers and donors from institute of higher learning and corporate sectors.
Tengah 'Lost in space...' mencari the endometrial Ca group yang rupa-rupanye mmng tak de ...Ishhh!
Ingat tu Cik Kiah ...!