Wednesday, July 1, 2009

Hanging On ...

My salam to all.

It's been 3 weeks since my surgery and alhamdullillah, I'm still blessed by God the alMighty with time to spend with my loved ones. No doubt after the surgery I was feeling very tired. Tired of the highest order. No kidding. I could hardly keep my eyes open. I'd dozed off most of the day. I was just like a new born baby, waking up a few minutes then find myself dozing off again. This went on for more than a week, before I decided to try and do something about it. But with my legs still wobly, what can I do? I cannot go out for morning walk like I used to do before. Exercise with other elders at the playground is still a no no and swimming? Huh? I gotta be joking...I reckoned I'd fall asleep the moment my head touch water... Ohh how I miss all the activities that I used to do before ... Uwaaa....! Nonetheless despite all that, the doctors said that my recovery was good, considering that the operation was a major one for me.

On the day of surgery E-ya told the surgeon that I have a history of waking up fast from the effects of aneasthethia so much so that the surgeon said that he will also administer me with extra sleeping pills so that I will not wake up quick enough to feel the pain from the cut on my head. But what happened instead? The surgery was over at around 2 am and I woke up early the next morning even with the extra sleeping pills.By noon I was already entertaining visitors in the ward. In fact I recalled receiving a lot of visitors that day and I was very excited seeing familiar faces of relatives and friends. But I think my visitors were more shock to see me. I had my head shaved at the back and the place where the incision was made was covered with plaster. When the plaster was removed, they can see all 40 big staples arranged in a U shape on the right hand side of my head, next to the ear. Me all skin and bones and now with U shape metal staples up on the head. It must have really been a sight.


I was only a day in the ICU before being transferred to the ordinary ward.In this normal ward I spent 5 days before I was discharged. I was a bit surprised as I thought I'd been in the hospital at least 10 days or more. But I think after the doctors saw me on two occassions already busy talking on the hand phone, me again wheeling myself on the wheel chair down the hallway or to other patient's bed and one morning found me hungrily devouring roti canai, well that must have been the day that they decided to say, "Get this lady outta here! Pronto!" Hahaha...


But before I was discharged I was given another CT scan and an appointment with the opthalmologist to check my eye. As I've mentioned before, after the surgey I'm having trouble with my eye sight. No it's not that I cannot focus or see things, it's just that I find my vision scope has narrowed a bit. I have trouble to see objects at the sides. I can see fine if the objects are in front but not at the sides. The first day I was at home, E-Ya was already shouting, "Acik! look out for the ...! But then too late...I already banged my head against the door as I couln't see it. Luckily nothing serious happened because of that. Even as I was typing this entry, I keep pressing the capslock key as I couldn't see it and I thoughtI was pressing the A or S key. Imagine all the mistakes I've made. Luckily dear E-Ya is around to do editing for me. Bless the girl. E-Ya told me when I was in the ICU , when I couldn't talk because there were tubes down my throat, I wrote notes to her but I mixed up the alphabets until she herslf does not know what I was trying to say. I mixed up the 's' 'b' 'd' 'a' and many others. Sometimes it's like as if I'm dyslexic. Other times I just mis spelt the words. But that was then. Now I don't have that problem anymore. Alhamdullillah. Another problem is that I have difficulty with adjusting distance of objects from me. Sometimes I think the object is there and try to grab it but then it's actually a little further or nearer from me . That's why earlier I said I'm experiencing optical illusions. I hope with time my vision canbe restored back to normal. Insya Allah. Because of this problem with my eye sight one funny thing happened when I was in the ICU. when I woke up the first question I asked my sister who waited on me was, "Sis are my eyes now squinted?" When she replied, "No", Boy that was a big relief!

And then the day came when I had to remove the staples on my head. I had them removed on Monday, a week after surgery. At first I was so damn afraid just thinking about it. Actually while in the hospital I did not get the oppurtunity to see the condition of my head. When I asked E-Ya or my sisters how did my head look like, they all just say, "Oh its fine, nothing to worry...". Yeah right... But when I got home and got posession of my handphone, the first thing I did was took photo of my head and I gotta tell you I myself was appalled and afraid to see that it looked like that. I'd never imagine that it would even be like that... I have the photos for my own personal momentos, but for you all I think its enough if I say that it looked like what Mawi always says, "World!". It's too gory to show it here and for those who have photo sensitive syndrome or photo sensitive epilepsy, I don't want to be the person responsible for your fainting, or seizures. Hahaha... Serious folks. My own brother doesn't even dare to look at it longer than just a few seconds. My sister was afraid to clean the wound eventho its healingwell. And who is the person most undisturbed by all these? Who else but E-Ya. At first I had my cousin Rozaida, who is the doctor to clean it for me. E-Ya watched and after that the responsibility was hers.

That was also the reason why I was afraid when the day came to remove the staples. I told E-Ya if the pain of removing the staples is excruciating, don't be surprised if I yell and grab the nurses by the neck. I reminded her to just be ready to restrain me from doing that. But alhamdullilah, even without anaethesia I did not feel pain when the nurse removed the staples. E-Ya was present when the staples was removed and she described to me how the nurses did it. She said the nurses used an apparatus to grab the staples and then yanked it out from the head. Ouch! But as I said no pain. Even if there was, it was just like ant bites only. The next day I was already shampooing my hair. Now the wound is completely dry and there is no pain at all. I do not also have any headaches. I really, really thank God the alMighty for making all these easy and painless for me.

Then last Monday, I went to see the oncologist. A new one again this time, but at least she knew my medical history. She said that I will be sent for brain radiotherapy and the simulation will be on 7th of July at 3.30 pm. She said The radiotherapy is to ensure there will be no recurrence, that it gets all the small tumors (if any) that cannot be captured by CT scan. Just thinking about it scares me, but I guess these doctors knows what'sbest for me, so I obliged. The only thing asked was what will the side effects be. She mentioned things like nausea, headaches and memory loss. Hem... Not too bad I guess... Whoa..., wait a second... MEMORY LOSS?? Will I not be able to recall events that had happened in my life or will I not remember my family, friends or even my own self? What about all my ex boyfriends? Jeng, jeng, jeng.... Oh well, adios guys ...

However looking thru the internet I found out that this memory loss is only temporary. and other side effects will also also include fatigue and hair loss. The doctor also said that I'll be zapped only 5 times and that there will be medications prescribed to me to control the side effects, so Insya Allah I'll be alright. But just in case, do pray for me too ya... Pray that I'll be able to tolerate all this and that my body will be able to withstand the procedure. As I am already fatigue right now and I don't know how much more fatigue I'll be.

That 7th of July will also be my appointment date with the Neuro surgeons. But it will be in the morning. So I guess I'll be pretty busy next week. Previously I had appointments with only two units - gynae onco and onco. But after the surgery I have two more attachments with the opthalmologist and neuro surgeon. I guess now HUKM is like my second family already.

OK I guess I'd better stop here before I fall asleep in front of this PC. I'll drop by again next time if I have the time and energy. Bubye!

14 comments:

life is ... said...

Salam

I am back in UK last Saturday. Want to call you but E-ya said that you are asleep. So dont want to disturb you.

All the best with the chemo/radiotherapy. I pray that you will be alright and the whatever cancerous cells are non life threatening.

Hope to catch up with you soon!

r2d2 said...

Hi Dja,
Tu laa kan, mmng I was asleep most of the time. So how are you now that you're back in the UK? Hope your thesis project is Ok and that your next trip back home will be with your Phd. Aminnn...

Anonymous said...

Don't worry, you're already in my prayers the first time I read your blog. Keep up with the positive outlook!!!

r2d2 said...

Dear Anon,
Tq, only God can repay your kindness. Insya Allah I will never cease to fight this illness of mine :)

Dr. Hasanah said...

Che Gu,

Reading your entry reassured me that you have no amnesia. U're such a heroic survivor...and what? Roti Canai ha ha ha...OK if that makes your day and your immune cells fighting, then why not...but remember, there are other healthier and appetizing choices...my prayer for u...

Has

D said...

My du'as and loves to you... May Allah ease the journey with blessings upon blessings!

You've got the right spirit - keep it up! :)

r2d2 said...

Dear Prof,
Oh Yes, I do remember still to get the greens into my body. As for the roti canai, blame it on E-Ya, she's the culprit, hahaha

r2d2 said...

Dear D,
TQ and may Allah also does the same for you. Ameen.

TST said...

utk kanser, cuba minum jus kisaran daun durian belanda ..google 'graviola'

r2d2 said...

Salam ST,
Makan durian belanda tu saya tahu jugalah baik utk merawat kanser, Tp ttng daunnya insya Allah akan saya usahakan. Thanks for the info.

Dennis Pyritz, RN said...

Great Blog! I added you to my blogroll (breast cancer?), Cancer Blog Links atwww.beingcancer.net
Take care, Dennis

Raden Galoh said...

Salam sis...

You are my inspiration... yes, arm in arm we battle this cancer eh?

Yes, hanya Allah penyembuh... your positivity terbang sini dah sis!

love you.

r2d2 said...

Dear Sis Raden Galoh,
..and you are mine ... I'm glad you're feeling much better. Yelah, elok dah tu... my positivivity terbang kat you and your positivity pun I ada rasa trbang kat I. So together-getherlah kita berterbang-terbangan melawan kanser kita ni ye. Cayok-cayok..!

r2d2 said...

Kak Ana @ anon,

Kak Ana , if its your comment yg saya terdelete tu jangan 'mare' ye. Ntah apa yg dibuat terus hilang je dr pandangan., tak sempat baca pun... maklumlah mata dah 'weng' uwah...!